What organizations provide support for Parkinson’s disease patients?

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May 29, 2024

What organizations provide support for Parkinson’s disease patients?

Several organizations provide support, resources, and advocacy for Parkinson’s disease (PD) patients, caregivers, and families. These organizations offer a wide range of services, including educational materials, support groups, research funding, and assistance with accessing medical care. Here are some prominent organizations that provide support for Parkinson’s disease patients:

1. Parkinson’s Foundation

Website: Parkinson’s Foundation

Services:

  • Educational Resources: Comprehensive information on PD symptoms, treatment options, and management strategies.
  • Support Helpline: A toll-free helpline staffed by PD information specialists.
  • Local Chapters: Offering support groups, educational events, and community engagement.
  • Research Funding: Supports research to improve treatments and find a cure.

2. Michael J. Fox Foundation for Parkinson’s Research

Website: Michael J. Fox Foundation

Services:

  • Research Funding: Focuses on accelerating research to find a cure for PD.
  • Clinical Trial Finder: Helps patients find and participate in clinical trials.
  • Educational Resources: Provides up-to-date information on PD research and treatment.

3. American Parkinson Disease Association (APDA)

Website: APDA

Services:

  • Information and Resources: Educational materials for patients, caregivers, and healthcare providers.
  • Support Groups: Local support groups and resources for people living with PD and their families.
  • Research Grants: Funds research aimed at finding better treatments and a cure.
  • Exercise Programs: Information on exercise programs specifically designed for PD patients.

4. Davis Phinney Foundation

Website: Davis Phinney Foundation

Services:

  • Living Well Today Resource: Provides practical tools and resources to improve the quality of life for PD patients.
  • Victory Summit Events: Free educational events held around the country to educate and inspire the PD community.
  • Research Funding: Supports research on living well with PD.

5. Parkinson’s UK

Website: Parkinson’s UK

Services:

  • Support and Information: Offers resources, local advisers, and a helpline for people living with PD.
  • Research Funding: Invests in groundbreaking research to find a cure and better treatments.
  • Community Engagement: Local support groups and activities to connect with others in the PD community.

6. Parkinson’s Disease Society of the United Kingdom (PDS UK)

Website: PDS UK

Services:

  • Education and Support: Provides information and resources on PD management.
  • Research Support: Funds research initiatives focused on finding a cure for PD.

7. European Parkinson’s Disease Association (EPDA)

Website: EPDA

Services:

  • Advocacy: Works to influence European policy and improve the quality of life for people with PD.
  • Information and Resources: Offers educational materials and resources for patients and healthcare professionals.
  • Research Collaboration: Supports research initiatives across Europe.

8. Parkinson’s Resource Organization (PRO)

Website: Parkinson’s Resource Organization

Services:

  • Support Services: Provides emotional support and practical resources for people with PD and their families.
  • Information and Advocacy: Offers educational materials and advocates for better care and treatment options.

9. Cure Parkinson’s Trust

Website: Cure Parkinson’s Trust

Services:

  • Research Funding: Focuses on funding research to find a cure for PD.
  • Information and Resources: Provides educational materials and resources for the PD community.

10. Parkinson’s Association of Ireland

Website: Parkinson’s Association of Ireland

Services:

  • Support Services: Offers information, advice, and support to people with PD and their families.
  • Local Branches: Provides local support groups and activities.
  • Research Support: Funds research to improve treatments and find a cure.

Conclusion

These organizations play a crucial role in supporting Parkinson’s disease patients, caregivers, and families by providing educational resources, support services, research funding, and advocacy. Patients and caregivers are encouraged to connect with these organizations to access valuable information, support, and opportunities to engage with the PD community.


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