What are the community support networks available for individuals with Parkinson’s disease in India?

The Parkinson’s Protocol™ By Jodi Knapp Parkinson’s disease cannot be eliminated completely but its symptoms can be reduced, damages can be repaired and its progression can be delayed considerably by using various simple and natural things. In this eBook, a natural program to treat Parkinson’s disease is provided online. it includes 12 easy steps to repair your body and reduce the symptoms of this disease. The creator of this program has divided into four segments to cover a complete plan to treat this disease along with improving your health and life by knowing everything about this health problem. The main focus of this program is on boosting the levels of hormone in your brain by making e a few easy changes in your lifestyle, diet, and thoughts

What are the community support networks available for individuals with Parkinson’s disease in India?

In India, community support networks play an essential role in providing assistance, information, and emotional support to individuals with Parkinson’s disease (PD) and their families. These networks help raise awareness, connect patients to healthcare professionals, and create opportunities for individuals to share experiences, receive resources, and improve their quality of life. Some of the prominent support networks and organizations in India for individuals with Parkinson’s disease include:

1. Parkinson’s Disease and Movement Disorder Society (PDMDS)

About: Founded in 1993, PDMDS is one of the key organizations working towards improving the quality of life for people with Parkinson’s disease in India. It provides education, support, and advocacy for patients and caregivers.
Services:
- Support groups and community meetings
- Information on Parkinson’s disease and treatment options
- Organizing events like walks and conferences to raise awareness
- Counseling for patients and families
Website: PDMDS

2. Parkinson’s Disease Foundation (PDF) India

About: PDF India is a non-profit organization that focuses on improving the quality of life for people affected by Parkinson’s disease through support, education, and research.
Services:
- Patient support groups across major cities in India
- Educational workshops and awareness campaigns
- Medical research funding and awareness initiatives
Website: PDF India

3. The Parkinson’s Disease Society of India (PDSI)

About: The Parkinson’s Disease Society of India is dedicated to improving the lives of people with Parkinson’s disease through advocacy, education, and support.
Services:
- Support for patients and caregivers
- Awareness campaigns and educational programs
- Social integration programs for individuals with Parkinson’s disease
- Providing access to resources and information on treatments and therapies
Website: PDSI

4. Movement Disorder Society of India (MDSI)

About: MDSI is a national organization that focuses on the education and advocacy of movement disorders, including Parkinson’s disease, in India. They promote research, training for healthcare professionals, and patient care.
Services:
- Conferences and workshops for both healthcare providers and patients
- Information dissemination on the latest developments in Parkinson’s treatment and care
Website: MDSI

5. Parkinson’s Support Group – Bangalore

About: Based in Bangalore, this group provides support and guidance to individuals living with Parkinson’s disease, offering a space for mutual encouragement, sharing experiences, and learning about available treatments.
Services:
- Monthly meetings for patients and caregivers
- Counseling and advice on living with Parkinson’s
- Exercise programs and wellness workshops
Contact: Various community centers or healthcare institutions in Bangalore

6. Parkinson’s Awareness Society of India (PASI)

About: PASI focuses on improving awareness and understanding of Parkinson’s disease across India. It provides information, support services, and facilitates access to treatment.
Services:
- Awareness campaigns for early detection and treatment
- Support groups and community meet-ups for patients and caregivers
- Collaboration with medical professionals to offer up-to-date care practices
Contact: Various locations across India

7. Parkinson’s Disease Support Group – Mumbai

About: This Mumbai-based group offers support and resources for individuals with Parkinson’s disease and their families. They focus on building a network of support through regular meetings and social events.
Services:
- Support group meetings for patients and caregivers
- Medical consultations and talks by specialists
- Psychological counseling and emotional support
Contact: Local community centers, hospitals, and healthcare providers in Mumbai

8. Caregiver Support Networks

About: Several informal networks and organizations across India provide support specifically for the caregivers of individuals with Parkinson’s disease. These networks offer emotional support, practical guidance, and respite care for caregivers.
Examples:
- Alzheimer’s and Related Disorders Society of India (ARDSI) offers support for caregivers of individuals with Parkinson’s and other neurodegenerative diseases.
- Caregiver groups that meet regularly in cities like Delhi, Bangalore, Chennai, and Mumbai provide space for caregivers to share experiences and advice.

9. Online Support Networks and Forums

About: In addition to physical community networks, various online forums and social media groups offer virtual support and a platform for individuals with Parkinson’s and their families to connect.
Examples:
- Facebook groups such as “Parkinson’s India Support” where members share information and provide support to one another.
- Parkinson’s Disease India Forums: Websites and online communities that offer a space for sharing experiences and coping strategies.

10. Yoga and Physiotherapy Programs

About: In recent years, there has been a growing focus on complementary therapies like yoga and physiotherapy to help manage Parkinson’s symptoms. Many centers in India offer specialized yoga classes and physical therapy programs tailored to individuals with Parkinson’s disease.
Examples:
- The Art of Living and Baba Ramdev’s Yoga programs have specific modules designed for individuals with Parkinson’s.
- Local physiotherapy centers offer individualized exercise programs focusing on improving movement and reducing rigidity and tremors.

11. Parkinson’s Disease Clinics and Hospitals

About: Major hospitals in India, including those in metropolitan areas, often have specialized Parkinson’s disease clinics. These clinics are run by neurologists and other specialists who provide diagnostic, treatment, and support services for Parkinson’s patients.
Examples:
- NIMHANS (National Institute of Mental Health and Neurosciences), Bangalore
- AIIMS (All India Institute of Medical Sciences), Delhi
- The Madras Medical Mission, Chennai

Conclusion

Community support networks in India for individuals with Parkinson’s disease are crucial for raising awareness, providing resources, and connecting patients and caregivers with essential support. These networks offer educational programs, therapy options, caregiver support, and opportunities for social interaction. By participating in these organizations, individuals with Parkinson’s disease and their families can access vital information and foster a sense of community.

Jodi Knapp